Rare Patient Advocacy Summit

Sept 27-29, 2021 | San Diego, CA

Hosted by Global Genes

As of 8/20/2021, Foundation for Cell & Gene Medicine learned that this event will be fully virtual, without an in-person element.

A variety of interactive and educational events, meet-ups, workshops and networking opportunities are planned for the Global Genes Patient Advocacy summit, livestreamed and in-person. You’ll have the opportunity to connect and engage with others in the rare disease community, while experiencing the sense of community and belonging that has been missed. Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies you can implement immediately to accelerate change.

This year, the RARE Patient Advocacy Summit will be held as a hybrid event with a limited number of patient advocates, partners, advisors and supporters participating onsite in San Diego.

Foundation for Cell & Gene Medicine will be present and Cynthia Kuan, Program Director, will be available for individual and group meetings.

This event is for patient advocates, both individuals and organizations. Live streamed and limited in person participation.